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All they want to do is cradle their newborn baby in their arms.
But Bedlington parents Carly Walker and Ryan Murphy have been forced to watch from the sidelines as their daughter fights for her life.
Little Ayda Faith Murphy was born prematurely on March 31, weighing just 4lbs, at Newcastle's Royal Victoria Infirmary.
Rushed for her first operation straight after birth and another at just four days old, she's battling terrifying odds after being diagnosed with a series of incredibly rare birth defects.
An almost unique variant of gastroschisis, a defect of the abdominal wall, has left her intestines pushing up into her chest - a condition doctors estimate is suffered by no more than 10 babies worldwide.
Meanwhile, her heart appears to have flipped over and lies on the wrong side of her chest, while she's receiving oxygen from a machine due to her underdeveloped lungs.
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I knew about it but I'd never actualy tried it until earlier this week. I'm talking about Puppy Linux.
It's a Linux that you don't need to install. One that is very small (but perfectly formed), and which boots very quickly. Actually there are numerous Puppies because there is a tool called Woof that makes it very easy for the computer savvy to generate yet another one.
I've now got a USB stick in my "man-bag" that can fire it up on just about any machine, and optionally install it permanently. Why would you want to do this? Well.. when you turn on that old lappy or desktop and it tells you that M$ got sick of waiting for you to buy the same old Windoze code yet again (a pop-up on the XP screen I'm told by a third party), then think Puppy Linux. You can have the old clunker working better than it ever did under Microsoft in no time at all, and you needn't pay a penny to M$ - ever!
Also great if a machine refuses to boot as you can likely get at all your files, and test that it's not a hardware problem, both at the same time.
This post is being written on an old Asus EeePC that was gathering dust for years. All it turned out to need was a new keyboard; £14 from Amazon. The battery is seems pretty good, so's I removed XP completely and installed Puppy. It's now better than new! Just about all the hardware was immediately recognised - no Windows driver hell!!!
I will write full instructions to put Puppy on a USB stick, and make it bootable, if anyone asks here. The information is out there is you search, but there are a bewildering number of ways to do it. It only took me a few minutes and a £3 8GB stick is more than adequate. In fact a 4GB would do almost as well. Puppy saves your work back to the stick by default, so you can resume your session on other hardware. Even with slow USB 2 this is still faster than the usual Windows XP boot sequence, and it tells you what is going on at every stage. Magic!
That's the new keyboard tested then! Posting beats the quick brown fox, any day!
http://rastrack.co.uk/ If that's anything like accurate - wow!
Was going to get one or two last year but I settled for an Olimex board, as those have a completely open design. Anyone in Bedders playing with a RP?
And... for those who haven't got a clue what this is all about: http://www.raspberrypi.org/